**Please note: This is an internal COFACE expert meeting**
(meeting documents are for internal use, not for dissemination)

COFACE Disability Platform for the rights of persons with disabilities and their families

13-14th June 2019
LUXEMBOURG

Meeting documents

Practical infopack
Round Table Flyer (13th June)
Agenda
Discussion Paper on Community-Based Services
COFACE conference on shaping a health environment fit for children – 3-4th October, Helsinki
(including a discussion about inclusive ECEC)

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Thursday 13 June
13.00 – 19.15
Visit to APEMH structure, services, workshops and resource centers
&
Round table on the implementation of art. 19 of the UNCRPD

13.00 – 13.30  Sandwich lunch
13.30 – 14.30   Presentation and visit to APEMH structure and workshops
14.30 – 17:00   Round Table on the implementation of the UNCRPD art. 19 on      independent living

 Spotlight on Luxembourg: state of play, challenges and successes

14.30 – 14.45 Welcome

Roland Anen, President of APEMH
Annemie Drieskens, President of COFACE

14.45– 15.45 Setting the scene at EU and Luxembourg level

Irene Bertana, COFACE Policy and Advocacy Officer, Independent living in Europe
Sandy Zoller, Ministry of Family Affairs, Integration and the Greater Region, DI in Luxembourg: challenges, successes and next steps
Michèle Racke, APEMH General Director, APEMH vision, experience and good practices on deinstitutionalization
Info Handicap-Conseil National des Personnes Handicapées asbl

15.45   – 16.30 Reactions from stakeholders

16.30-17.00    Conclusions and next steps

17.00 – 17.30 Bus trip to Bettembourg for site visits
17.30-18.15    Visit of the inclusive early childcare facility Kokopelli and presentation of the different actions that the Resource Centre Incluso offers to support the inclusion of children with special needs

18.15–19.15    Visit to the of the Parc Merveilleux, presentation of its workshops and aperitivo

19.30-22.00    Dinner

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Friday 14 June
9.00-15.30
Internal COFACE disability meeting

09.00 – 13.30 Current EU developments, transnational exchanges and building common European tools

9.00-10.00 Update on disability-related EU developments
COFACE policy and advocacy officer, Irene Bertana, will provide an update on key EU developments including:

    • Legislation: European Accessibility Act and Work-Life Balance Directive
    • the future of the EU Disability Strategy
    • Disability in the European Pillar of Social Rights, the Semester and future EU budget
    • Partnerships of COFACE in the field of disability (European Expert group on the transition from institutional to community-based settings, Taskforce on co-production, European Disability Forum, Social Platform)

10.00-11.00 Debate and exchange of members’ good practices and challenges in the field of co-production
The kick-start of the discussion will be the APEMH presentation: Coproduction: new approaches in building responses and development of co-production methodologies (Incuba)

11.00-11.30 Coffee break

11.30-12.30 Building common tools

We will explore the possibility of adopting a COFACE typology of community-based services for persons with disabilities, in order to start defining the type of services that families want (core values, key dimensions, operational service criteria to be taken into account).

12.30-13.30 Lunch break
13.30-15.30 COFACE added value and future action

This session will be the opportunity to brainstorm together in groups and then collectively on the best way for COFACE to add value to the work of members. We will start with a brainstorm on emerging priorities and discuss possible common actions (campaigns, study, transnational projects, research) with 2020 and 2030 in mind. Thinking both in the short-term and the long-term.

List of the topics to be discussed:

  • Next steps in our actions on family carers (long-term care package under European Pillar of Social Rights / support / positioning for the next ESF+ funding)
  • Sports and disability (COFACE Disability 2020 event linked to Italian special Olympics / Declaration on Disability and Sport)
  • Disability and parenthood (members’ activities in place/Erasmus+ project?)
  • Ageing of family carers (research/exchange between members/position paper)
  • De-inistutionalistation (10th EEG anniversary: next decade DI priorities?)
  • FOXP2: a website that connects families of young disabled people across Europe with the aim of facilitating language travel on the assumption that families share the same facilities and know-how (could COFACE Disability play a role there? Which one?)

15.30 End of meeting

 

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